Scoop has an Ethical Paywall
PHARMAC appeal on treatment for ultra-rare blood disease
New Zealanders rallying PHARMAC for life-saving
treatment for ultra-rare blood disease
Eight Kiwis
battling an ultra-rare blood disease that claims the lives
of one-in-three patients within five years of diagnosis, if
untreated, will be appealing to PHARMAC this Thursday,
January 24, to save their lives.
A life-saving
treatment renowned for its powerful reversal of disease
progression, is available under funding arrangements in more
than 40 countries world-wide.
Yet New Zealand remains an anomaly – the only country in the advanced OECD not funding the treatment for its citizens.
If these Kiwis don’t get access to this treatment, they will die. It’s simply a matter of time.
Their only hope for survival rests in the hands of NZ government medicines-funding agency, PHARMAC.
ENDS
Download full media kit THURS, JAN 24 @ www.pnhsanz.org.nz/media
Click for big version.
NZ Society for the Study of Diabetes: Critical Workforce Shortages Leave People With Type 1 Diabetes Unable To Access Life Changing Technology
Kindergartens Aotearoa: Kindergartens Aotearoa Opposes Lower Standards For Homebased Services
Universities New Zealand - Te Pokai Tara: Three Outstanding Aotearoa New Zealand Students Awarded Rhodes Scholarships
University of Auckland: 800 Mathematicians Set To Converge On Auckland
NZEI Te Riu Roa: NZEI Te Riu Roa Joins Calls To Restore Cut To Pasifika Early Literacy Project
NZ Opera: New Zealand Opera To Celebrate 25 Years In 2025