Organ donation back in the Too Hard Basket (Again)
GiveLife NZ
28 September
2007
Parliament puts organ donation back in
the Too Hard Basket. (Again!)
Parliament's Health
Select Committee have today released their long awaited
report into organ donation.
In a surprise move,
they have recommended that there be no register at all.
Therefore this completely scraps Dr.Jackie Blue's Private
Members Bill for a legally binding register and overturns
their own recommendations twice previously for a
register.
Andy Tookey of GiveLife NZ who co-wrote
the proposed legally binding register legislation with
Jackie Blue is absolutely stunned by their
announcement.
"Most of the MP's involved with this
process said in their press releases, and in their speeches
on the first reading of the bill(s) that they were pleased
it was coming in front of the Health Select Committee as it
was about time they fixed the problems with organ donation
once and for all.
What they have just announced has
put us backwards by five years. There is not one single
item in their report today which goes towards making any
recommendations for fixing up a system that they themselves
have said badly needed fixing. They have deferred the
decision on a register into the 'too hard basket' yet
again.
I was under the impression that the whole
point of their discussions was over whether it should be a
legally binding register or a non binding register as all of
them have agreed that the driving licence is not informed
consent, you cannot specify which organ you would like, or
not like to donate and non drivers can't record their wish
at all. So to overturn two previous health select committee
recommendations for a register makes you wonder why we spend
tens of millions of dollars a year on financing select
committees. It is certainly a fingers up to the majority of
submitters to the committee who were in favour of not only a
register but a legally binding one. And also to the 80%-91%
of the public who in polls felt the same. It makes a mockery
of the name of the building that they made these decisions
in. 'The House of Representatives.'
If feel that
The select committee has given in to the powerful
'do-nothing' lobby at the Ministry of Health who have been
clear in their opposition to this from the start. It's a
case of the 'tail wagging the dog.'
The Government
tends to do what it wants and ignores select committees when
it wants anyway. I hope this will be one more time and they
will stick by their pre-election announcement of a
register.
If not, then as there is such strong
public support for a register I think it should be added to
the growing list of things that should be decided by a
binding referendum.
Jackie Blue must be devastated
by the committee's decision as she has done so much work and
spent so much time on the bill to help save lives, to have
it thrown out in it's entirety, not just the register but
the public awareness campaign and other suggestions to
improve the organ donor rate as well is just a huge slap in
the face.
Below are some extracts of what the MPs
(who are or were) on the Health Select Committee said at the
first reading of just Jackie Blue's Bill (doesn't even
include the government bill.) Compare what they said then
(last year) to what they voted for today..... (Though we do
not know at this stage who voted which way - "Unanimous" is
the text used in the
reports.)
************************************************************
ORGAN
DONATION BACK IN TOO HARD BASKET
New Zealand
First’s health spokesperson Barbara Stewart is
disappointed that the Minister of Health has not accepted
the Health Select Committee’s recommendation that a
national organ donor register be
established.
“This is the second time in a year
that the Minister has rejected the advice of the select
committee on the issue of organ donation, said Mrs.
Stewart.
“If the Minister was serious about
improving our dismal organ donation rates she would be
taking a more proactive stance than simply deferring any
action until next year at the earliest and possibly even
further down the track, said Mrs. Stewart.
“We
are left with the current driver’s licence system for
recording organ donor preferences which many donors believe
is an official record of their wish to donate but which in
fact is a total waste of time.
“The Minister has
passed up another opportunity to set in place a system which
works and in the meantime people waiting for transplants are
no better off than they were before the select committee
considered this issue,” said Mrs. Stewart.
New Zealand
First Press
Release
*************************************************************
We
were pleased in New Zealand First to see that the bill
discusses setting up an opt-on register. We believe that
most people, when they tick the donor box on the
driver-licensing application, believe they will be a donor,
but this is actually not the case, unfortunately. There is
no link between the land transport and the health databases.
So one must wonder why people are asked during the
driver-licensing process about becoming a donor, when their
decision cannot be enforced.
Barbara Stewart - NZ
First 3rd May 2006
Human Tissue (Organ Donation)
Amendment
Bill
*************************************************************
but
we must acknowledge that some action is better than no
action. I am reminded of the saying that failure is not the
worst thing in the world, the very worst thing is not to
try.
Barbara Stewart - NZ First 3rd May 2006
Human
Tissue (Organ Donation) Amendment
Bill
************************************************************
The
interesting thing is that Andy Tookey brought this issue to
Parliament about 3 years ago, I think. The Health Committee
considered it and wrote a report. We had a whole lot of
recommendations, and basically the Government turned down
most of them. I suspect that, really, this bill is
implementing a number of our recommendations—for example,
the establishment of a national donor register to replace
the current driver’s-licence system. I personally feel
frustrated at the length of time this has taken. We
discussed this issue, and all members on the Heath Committee
agreed that it was urgent and that it was a priority, yet
nothing seems to have happened. So I am absolutely delighted
that this bill will force the Health Committee to deal with
the issue. I hope that we can deal with it as expeditiously
as possible, because, frankly, I am frustrated at the
seeming lack of action despite the petitions and the
recommendations that we have already made.
Sue
Kedgely - Green Party & Chair of the Health Select
Committee- 3rd May 2006
Human Tissue (Organ Donation)
Amendment
Bill
*****************************************************
The
other problem is that at the moment it is not clear what a
request on a driver’s-licence application form exactly
permits. It states: “Would you be willing to donate organs
in the event of your death?”. As Barbara Stewart has
pointed out, what does this mean—for what purpose? Would
it be for a therapeutic purpose? It could be interpreted as
giving permission for one’s organs to be used for medical
research and education, which some people may not be happy
about, at all. So, frankly, the driver’s-licence system,
as we all agreed many years ago, does not work, and we need
to scrap it. We need to set up an organ donor register, and
we need much more publicity. Those are the sorts of things
that are proposed in this bill—and were proposed to the
Health Committee a number of years ago—and we hope that
this time it will result in the select committee, or the
Government, coming up with legislation that will address the
situation and we will not have 2 or 3 more years of
delay.
Sue Kedgely - Green Party & Chair of the
Health Select Committee- 3rd May 2006
Human Tissue (Organ
Donation) Amendment
Bill
*******************************************************
This
bill is long overdue. For years we have put up with the
silly situation whereby upon going into an Automobile
Association office to sign up for a driver’s licence, we
suddenly, often unexpectedly, are faced with the chance to
tick a box and say whether we are prepared to be a donor.
Often we have not given it any thought at all, and we make a
snap decision. I know of many people who did not tick the
box because they could think of parts of their body that
they did not want to donate, and other parts that they would
be happy to donate. They did not get that option on the
form, and therefore they ticked “No”. The other aspect
is that two very unrelated things—a driver’s licence and
an organ donation system—are linked together, and that
very matter was one of the things the select committee
looked at when Mr. Tookey petitioned us.
Judy
Turner - United Future
3rd May 2006
Human Tissue
(Organ Donation) Amendment
Bill
*******************************************************
I
admit to some frustration with the New Zealand
driver’s-licence system, and the farce that it is to tick
the box to be registered as a donor.
Steve Chadwick -
Labour & previous Chair of the Health Select Committee - 3rd
May 2006
Human Tissue (Organ Donation) Amendment
Bill
********************************************************
Another
area of contention in the current Act is the lack of a
national register for organ donors, as well as there being
no choice as to what organs a person can choose to donate.
For an organ donation system to work effectively, a national
register such as the one Dr Blue proposes is necessary. This
is because such a register would include non-drivers, unlike
the current system, and would allow people to specify which
organs they would and would not like to donate once they are
deceased. As well as this, they would be given a choice
about what their organs would be used for—for medical
research or for donation to a fellow human being.
In 2004
the Health Committee considered the issue of organ donor
rates and what could be done about increasing them. Although
there have been efforts to act on many of the committee’s
recommendations, it is clear that more impetus is required.
New Zealanders deserve the chance for this bill to be
examined at select committee level. There is a groundswell
of public support out there for this issue to be examined.
The articles, letters, and editorials in our newspapers are
testament to this. We are under no illusion that there will
not be difficulties in enacting what this bill proposes, but
we would be letting down the people of New Zealand if we
filed this one away in the too-hard
basket.
Jonathan Coleman - National - 3rd May 2006
Human Tissue (Organ Donation) Amendment
Bill
**********************************************************
Organ
Donor Register to be established
Thursday, 1 September
2005, 5:49 pm
Press Release: New Zealand Labour
Party
1 September 2005
Organ Donor Register to
be established
The Labour Government will establish
a nation-wide Organ Donation Register next
year.
Prime Minister Helen Clark and Health
Minister Annette King made the announcement today while
releasing Labour's full health policy.
Annette King
says Labour is responding to a ground-swell of public
opinion that New Zealand needs to improve our rate of organ
donations.
"High profile cases like Jonah Lomu's
show the value of donated organs, and have helped shape
public opinion," she says.
"And the Andy Tookey
petition to Parliament, lodged in 2002, has also raised the
profile of the need to do better in this
area."
Following a major review and consultation on
changes to the Human Tissue Act, Labour has decided there is
a need to have a comprehensive policy to increase the number
of donated organs, Ms King says.
She says the Organ
Donation Register will be administered by the Ministry of
Health and final details will be worked out in conjunction
with District Health Boards and Land Transport
NZ.
"The issue of consent has stimulated
considerable debate, and the Organ Donation Register will
ensure that there is an effective, informed consent process,
so that people who have indicated they want to be organ
donors have their wishes respected."
Ms King says
Labour has already established a national office called
Organ Donation New Zealand to raise the profile of organ
donations, and to work alongside health professionals and
families.
"The Government has also already
announced it will cover some of the costs incurred by live
donors."
********************************************************************
NZ
Herald - 2 9 05
Labour plumps for organ donor
record
02.09.05
Labour promised
yesterday to establish a national organ donor register next
year.
Health Minister Annette King said details
would be worked out with district health boards and Land
Transport New Zealand.
There would be an informed
consent process "so that people who have indicated they want
to be organ donors have their wishes respected".
Ms
King said Labour was responding to the public's belief that
New Zealand needed to improve its rate of organ
donations.
"High-profile cases like Jonah Lomu's
show the value of donated organs and have helped to shape
public
opinion."
***********************************************
King
vow on donor register
02 September 2005
Health
Minister Annette King said the register was a response to a
groundswell of public opinion that New Zealand needed to
improve its organ donation rate.
It was not a
cure-all, but one of a raft of new initiatives, she
said.
Under existing rules, New Zealanders can
elect to be a donor on their driver's licence, but that is
effectively worthless as it is not deemed a proper consent.
It is the family who make the final
choice.
***********************************************
Cabinet
Papers on Human Tissue Review released
Thursday, 2 March
2006, 3:41 pm
Press Release: Ministry of Health
2
March 2006
Following extensive public consultation
the Ministry made policy proposals to Government, which have
been released today.
After receiving the policy
advice, Government last year announced that a nation-wide
Organ Donor Consent Register would be developed during
2006.
*************************************************
Lobby
group says organ donor proposals don't go far
enough
Posted at 6:00am on 3 Mar 2006
A
group campaigning for a better organ donor system says
Ministry of Health recommendations on the issue don't go far
enough.
The Ministry recommends the Government
continue with an organ donor consent register, announced
last year.
It suggests three options for who can
give consent for the person's organs to be used for science
or transplantation.
But Andy Tookey from the group,
Give Life, says the review is a cop-out because the options
still let family members override the dead person's wish to
be a donor.
The Ministry's chief clinical advisor,
Dr Sandy Dawson, says the register will ensure there is an
informed consent
process.
ENDS